Founder & President, Patient Privacy Rights, Austin, USA
Why you should listen
Deborah Peel, M.D. is a practicing physician and Freudian psychoanalyst. She is also the Founder & President of Patient Privacy Rights, an organization protecting the rights to control the use of personal health information in electronic systems.
Deborah points out the even if HIPAA (Health Insurance Portability and Accountability Act of 1996) does protect individuals’ data, subsequent implementation of it stripped out consent. Her team educates the public about hidden surveillance technology that destroys privacy & propose solutions: realistic privacy-enhancing technologies that ensure both personal control over health data & research, strong privacy principles and standards, and awareness of privacy threats.
In 2006, she formed the bipartisan Coalition for Patient Privacy backed by Microsoft. The Coalition’s tough privacy protections were included in the stimulus bill: a ban on the sale of health information w/o consent.
Meet Deborah at the Worldwebforum 2020 where she is a Digital Health Track Speaker.
About Patient Privacy Rights
Patient Privacy Rights is the nation’s leading health privacy advocacy group. We work to restore your right to control personal health information. The current lack of health privacy leads to discrimination in employment, credit, education, and insurance, along with damage to reputations and other lost opportunities.
Worst of all, people take actions that put their health and lives in danger, avoiding treatment, medication, or tests, and often lie to their doctors out of fear that their privacy is not being protected.
Four out of the last five years Patient Privacy Rights’ Founder, Deborah C. Peel, MD, has been listed in ModernHealthcare magazine’s “100 Most Influential People in Healthcare.”
Is Project Nightingale the “Cambridge Analytica” of the US ‘Healthcare’ sector?
Will the Google-Ascension theft and use of millions of patients’ health data without consent finally expose the total lack of US health data privacy?
Deborah C. Peel, MD is possibly the world’s leading digital ethicist/privacy warrior advocating for the universal human right to privacy, i.e, to control the disclosure of our most sensitive personal data: data about our minds and bodies.
Ethical solutions for the Digital Age can’t be written in words. Ethical solutions require provable code for self-sovereign technologies using OS, standards-based technology to ensure individuals control personal health data, not government or corporations. Is the US a Democracy if the universal human right to privacy is trumped by government and industry’s rights?
In 2002 the US stripped all 280 million citizens of the right to privacy:
“The consent provisions…are replaced with a new provision…that provides regulatory permission for entities to use and disclose protected health information for treatment, payment, and healthcare operations.” 67 Fed. Reg. 53,183
(It seems no one read the regulations; government & industrry are still selling the lie that “HIPAA is a Privacy Rule”)
In 2004 Dr. Peel retaliated by founding Patient Privacy Rights (PPR) after 30 years as a psychiatrist and Freudian psychoanalyst. The only way to restore patient trust in health professionals is to enforce a Hippocratic Oath for the Digital Age. Without trust and control over personal data, there will never be full and accurate data about our minds and bodies for treatment or any other use. Current US health data are filled with errors and omissions that humans or machines don’t reconcile, which means US health data are all ‘Bad Data’.
PPR educates the US and the world about the need for health privacy via its International Summits on the Future of Health Privacy, by bestowing Louis D. Brandeis Privacy Awards on national and international scholars & advocates who promote the human right to health privacy, and by leading a bipartisan coalition of 50 organizations representing 10.3M people to advocate in Congress, federal agencies, and with the healthcare industry.